The MS Trust is a UK charity which believes that no one should have to manage MS alone. We provide trusted information and support to help people with MS live the best life possible; train and educate MS health professionals to offer the best care and fund MS nurses in the areas of greatest need.
Supporting people affected by MS
At the MS Trust we believe one of the best ways to help people with MS is to support them to take more control of their MS. Our information team produces practical, evidence based information so people affected by MS can:
- make choices that are right for them
- decide how best to deal with their health
- have better informed discussions with their health professionals.
If people have questions about MS we’re here to listen and help find the right answer for them.
We focus on health information but anyone affected by MS can ask us about anything to do with the condition. If we can’t find the answer ourselves we’ll try to suggest the best people to help. Our Free Phone Information Service is available Monday to Friday, 9am to 5pm on 0800 032 3839 and we can also be contacted by email firstname.lastname@example.org or via our Facebook group www.facebook.com/groups/multiplesclerosistrust
We also produce a range of free resources for everyone affected by MS. Our booklets and online resources are written by our team of experienced information professionals and cover every aspect of MS, from A-Z, and are accredited by the Information Standard.
All our information is free, online or delivered direct to those who need it, so we rely on donations, fundraising and gifts in wills to fund our services.
Supporting specialist services
The MS Trust is committed to supporting and developing MS specialist services in the UK because we believe that this will result in the best care for people living with MS.
Access to specialist services, and in particular MS nurses, is essential if people living with MS are to receive the full range of support they might need. We work hard to produce evidence to identify what is required and demonstrate the value of specialist services.
Once services are in place, we provide specialist education and continuing professional development for health and social care professionals to ensure high quality services are maintained. Many people assume that this will be provided by the NHS. Sadly it is not, which is why the MS Trust’s education programme is a vital factor in building MS specialist services in the UK.
The MS Trust has long campaigned to increase the number of MS nurses in the UK, but there are still not enough. Worse still, some existing MS nurses are at risk. The MS Trust’s MS Nurse Support Programme plays a crucial role in protecting and developing these specialists. We fund MS nurses in the areas where they are most needed, offer one to one mentoring, advocacy to specialists facing reviews of their services and a range of tools to help them audit their own services and to demonstrate their own value.
But we’re not just about specialist nurses
Because MS is a complex, lifelong and unpredictable condition, we believe that people with MS need access to a full team of MS specialists, from neurologists and nurses to physiotherapists and occupational therapists, and a whole range of other health professionals.
We support MS teams with our award-winning, evidence-based information resources, by offering regular training opportunities and by running the biggest annual conference for MS health professionals in the UK. This helps ensure that MS teams stay up to date with all the latest developments in the world of MS, can share best practice and can provide the very best care for everyone with MS.
Finally, we work with MS teams to show the difference they make for people with MS. We help them respond to the challenges facing services and look at new and effective ways of providing the best possible care to everyone affected by MS. This is vital support at a time when the NHS is coming under increasing pressure.