MS Life is returning to Manchester on 26 and 27 April 2014.
The MS Society is looking for people to inspire and inform the MS community about living well with MS. Do you have something to share at MS Life?
If so, complete the application form
Registration is now open for Europe's biggest conference on rehabilitation in MS conference in the UK next June, jointly hosted by the MS Trust and the UCLH MS Team at Queen Square.
“We are delighted to be hosting the 19th RIMS conference,” said Amy Bowen, Director of Service Development at the MS Trust. “This is a great opportunity for health professionals to learn, share best practice, network, and hear key clinical and opinion leaders in multiple sclerosis from Europe and beyond.”
“Rehabilitation in MS is a vital element of care across the whole of the disease trajectory and relies on a multi-disciplinary approach,” said Peter Feys, President of RIMS. “We are very much looking forward to bringing the RIMS conference to the UK and sharing a wide range of expertise and experience.”
Keynote speakers will include Professor Alan Thompson from the National Hospital for Neurology and Neurosurgery and Dr Jared Bruce from the University of Missouri.
This year, RIMS is offering a unique opportunity for a limited number of delegates to attend an MS Masterclass at the National Hospital for Neurology and Neurosurgery at Queen Square, London. This gives our European colleagues an opportunity to visit one of the world’s premiere MS services, leading the development of new treatments and interventions for multiple sclerosis at all stages of the disease.
For registration details, a draft programme and the call for abstracts see www.rims2014.org
The Scientific Committee welcomes the submission of abstracts for presentation at RIMS. Abstracts can be submitted for poster and/or platform presentation. All accepted abstracts will be published in a special supplement to a future edition of a relevant clinical journal. Six prizes will be awarded for the three best posters (€500, €300, €100) and for the three best platform presentations (€300, €200, €100).
The deadline for submissions is 31 January 2014. For guidelines, submission details, booking information and the draft programme see www.rims2014.org
NEW: ECTRIMS Multiple Sclerosis Nurse Training Fellowship Programme
Application Deadline: 1 February 2014
This fellowship is offered to qualified/licensed European nurses to provide the opportunity for them to obtain additional expertise through practical nursing experience and training in a mentored MS environment in Europe. The aim of the programme is to enhance care and support of individuals with MS by fostering improved clinical care and education and by helping to promote best practices in nursing care throughout Europe.
ECTRIMS will support up to two fellowships each year, each with duration of 6 months to 1 year, with a stipend of up to €50,000. Training must be under the direction and mentorship of a senior MS nurse, in association with a senior MS clinician where appropriate, at a European clinical site with significant expertise in MS.
For more specific programme details and application materials, see www.ectrims.eu/ectrims-multiple-sclerosis-nurse-training-programme.
Details about all ECTRIMS Fellowship Programmes and application material can be obtained from the ECTRIMS website: www.ectrims.eu/fellowships or by writing to the ECTRIMS Fellowship Administrator.
The Trajectories of Outcome in Neurological Conditions (TONiC)
study is a multicentre longitudinal study on the quality of life (QoL) of patients with neurological conditions. It aims to identify factors that affect quality of life in conditions such as Multiple Sclerosis (MS) and Motor Neurone Disease (MND) with particular emphasis on those which clinical services may be able to influence. These factors will be modelled to help us improve the QoL of future patients. The study has been adopted by CLRN and DeNDRoN.
TONiC is one of the largest studies on quality of life in disabling neurological conditions ever conducted, recruiting 2000 patients with MS of any subtype and at any stage of the illness.
How can I be involved?
The feedback obtained from professionals, alongside the input received from more than 2500 patients over 30 sites throughout the UK, will be used to produce disease-specific models of QoL. MS Specialist Nurse’s expertise is essential in ensuring the models produced have face validity, applicability and value in clinical practice.
People with MS or MND at any stage of their illness are also welcome to participate.
The results from TONiC will be used to tailor services, to focus therapies and to identify aspects of these conditions that are important to patients, but might be underestimated by current service provision. As a patient, you can inform your neurological team that you wish to take part, by doing questionnaires at home by post or on the internet.
For more information please go to: www.tonicstudy.org If you require any further information, please do not hesitate to contact Nadia Rose.
MS Today - a magazine for MS Nurses and Therapists
The magazine is intended as an educational tool and also a way for nurses to share best practice. Regular content will include clinical news updates, features on hot topics such as audit and interviews with nurses, as a way of sharing best practice - stories such as setting up new services / methods to helping patients self-manage etc, forthcoming events.
There is also an online Clinical Communities resource for MS Specialists which provides e-learning, news, networking and other resources. Full members of the UKMSSNA will automatically receive a free copy. Any other MS specialist can register to receive the magazine Download registration form
MS Society Information Services
The newsletter from the MS National Centre (MSNC) Information Services
team is a simple way to keep up to date with new resources, information events and examples
of good practice from around the country.
The info team is there to support people affected by MS to access up-to-date evidence based
information and to signpost to other sources of expertise. Through working with colleagues at
MS National Centre and locally we can together meet the information needs of everyone affected by MS.
Contact the MS Society Information Team at or phone 020 8438 0799.
The MS Trust Information Service
Whatever your question about MS, the MS Trust’s Information Team is there to help you try and find the information you need. Using their collection of medical papers, textbooks and other resources, they will find information to match your particular questions, whether it be symptoms or treatments or literature searches to help with service development.
Contact the MS Trust Information Team or phone 01462 476700